HCS Raport Anual 2013 Web

Making every moment count!

2013Raport Anual Annual Report www.hospice.ro

Coninut Contents

HOSPICE Casa Speranei, organizaie nonprofit nfiinat n 1992 la Braov, a introdus conceptul de ngrijire paliativ i a oferit pentru prima dat servicii specializate de acest tip, n Romnia.

ngrijirea paliativ vizeaz mbuntirea calitii vieii pacienilor i familiilor acestora atunci cnd se confrunt cu problemele unei boli incurabile, prin ngrijire medical pentru pacient, sprijin social i consiliere psihoemoional i spiritual pentru pacient i aparintori.

n cei 22 de ani de existen, HOSPICE a adus alinare i speran pentru peste 14.600 de pacieni. Organizaia este recunoscut ca reper n materie de educaie n ngrijirea paliativ, oferind cursuri de specializare pentru profesioniti din Romnia i din strintate.

Toate serviciile oferite de HOSPICE Casa Speranei pacienilor i familiilor acestora sunt gratuite.

HOSPICE Casa Speranei, a charity founded in 1992 in Braov, introduced the concept of palliative care and offered specialised services of this kind for the first time in Romania.

Palliative care aims to improve the quality of life of patients and their families when affected by an incurable illness, offering medical care for the patients, social support, psycho-emotional and spiritual counseling for the patients and their families.

In its 22 years of existence, HOSPICE has brought comfort and hope to over 14,600 patients. The organisation is recognised as a benchmark in palliative care education, providing training for professionals from Romania and abroad.

All services provided by HOSPICE Casa Speranei for the patients and their families are free of charge.

Crezul HOSPICEHOSPICE mission statementViziune i misiuneVision and mission

HOSPICE, n vieile pacienilorHOSPICE in patients lives Servicii pentru pacieni i familiile acestora Services for patients and their families

ObiectiveObjectivesMesajul Directorului ExecutivExecutive Director's message

Proiecte i programeProjects and programmes

De unde vin fondurile HOSPICEWhere the funds are coming from

Iubirea n micareLove in action Voluntarii HOSPICEHOSPICE Volunteers

Cauza HOSPICE, susinut de comunitateThe HOSPICE cause, supported by the communityStrngerea de fonduriFundraising

ProvocareaThe challengeMesajul PreedinteluiPresidents message

HOSPICE, n inima pacienilorHOSPICE in patients hearts Mrturiile beneficiarilor Testimonies of beneficiaries

Profesioniti pentru oameniProfessionals for peopleEducaie i dezvoltare naionalEducation and national development

Un vis devenit realitate A dream come trueCentrul HOSPICE n BucuretiHOSPICE Centre in Bucharest

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1 Crezul HOSPICEHOSPICE mission statementViziune i misiuneVision and Mission

Credem n ngrijirea paliativ ca drept al omului. Viziunea noastr este cea a unui viitor n care toi pacienii cu boli incurabile din Romnia vor putea tri cu demnitate pn n ultima clip, beneficiind de servicii de specialitate la momentul potrivit, ca persoane respectate de societatea din care fac parte.

We believe that palliative care should be a human right. Our vision is of a future where all patients with an incurable illness in Romania are able to live and die with dignity, having access to specialised services at the right moment, as respected and valued members of their society.

Misiunea noastr este dezvoltarea serviciilor de ngrijire paliativ n Romnia i promovarea lor la nivel naional prin sensibilizare, advocacy i educaie.

Our mission is to develop palliative care services in Romania and raise awareness at a national level through advocacy, promotion and education.

Este firesc s te simi copleit cnd ncerci s atingi un obiectiv ce pare imposibil, pe de o parte, s obii fondurile necesare nfiinrii unui nou centru HOSPICE i, pe de alt parte, s reueti s finanezi n ntregime serviciile de ngrijire existente. Totui, este unul dintre momentele n care ni s-a reconfirmat faptul c nu suntem singuri, c suntem susinui de un numr tot mai mare de oameni care mprtesc valorile noastre i care ne ajut s atingem imposibilul.

Personal, atunci cnd m simt copleit, m gndesc la Marius, un pacient pe care m simt onorat s-l numesc prieten. l vizitez des i, cu toate c este paralizat complet, plec de la el simindu-m inspirat i motivat.

Marius abia ateapt s vad deschis noul centru HOSPICE i, cu siguran, nu este singurul.

De aceea, fie c eti un susintor din Braov, Bucureti sau din oricare alt col al rii, am vrea s tii c ajutorul tu nseamn foarte mult.

It is easy to get overwhelmed when you are trying to raise a seemingly impossible target to fund both a new HOSPICE and keep all the existing services running. However, it is comforting to know that we have such a loyal, generous and growing number of supporters who share our values and work with us to achieve the impossible.

Personally, when I get that overwhelmed feeling I stop and think about a patient, Marius, who I am also proud to call a friend. I visit him often and, although he is completely paralysed, I always come away feeling renewed and inspired.

Marius is looking forward to the new HOSPICE being opened and certainly he is not the only one.

So, whether you are a supporter in Braov, Bucharest or elsewhere in Romania, please be assured that your generous help means so much.

2 ProvocareaThe challengeMesajul PreedinteluiPresidents message

GRAHAMPEROLLSPreedintePresident

Serviciile fundaiei sunt gratuite i sunt gndite astfel nct tot mai muli pacieni s aib parte de sprijin i ngrijire atunci cnd au cea mai mare nevoie. Ele sunt disponibile pentru pacienii din Braov, Fgra, Zrneti, Bucureti i zonele adiacente.

ngrijirile paliative oferite de HOSPICE nseamn asisten medical, suport psihologic, spiritual i social, n unitatea hospice, n spitale i la domiciliul pacienilor.

The services offered by the Foundation for the patients and their families are free of charge and are conceived so that more and more patients have access to care and support when they need it the most. They are available for patients from Braov, Fgra, Zrneti, Bucharest and surrounding areas.

The palliative care offered by the HOSPICE comprises of medical assistance, psychological, spiritual and social support in the hospice unit, in hospitals or in patients homes.

3 HOSPICE, n vieile pacienilorHOSPICE in patients lives Servicii pentru pacieni i familiile acestora Services for patients and their families

de copii i aduli diagnosticai cu boli incurabile au gsit lumin i alinare la HOSPICE.children and adults diagnosed with incurable illnesses found light and comfort at HOSPICE.

Numai n 2013,In 2013 alone,

NGRIJIRE PALIATIV LA DOMICILIU (asisten multidisciplinar acordat acas)PALLIATIVE CARE AT HOME (multidisciplinary care offered at home)

CONSULTAII N AMBULATORIU (asisten fr internare)CONSULTATIONS IN OUTPATIENT CLINIC (assistance without admission)

SPITALIZARE N UNITATEA HOSPICE (internare)HOSPICE INPATIENT UNIT ADMISSION

ViziteVisits

ConsultaiiConsultations

InternriAdmissions

16 941 10 593616

SERVICII SOCIALE(asisten social acas, consiliere n ambulatoriu, ntocmirea documentaiei i obinerea drepturilor sociale, organizarea grupurilor de suport, a activitilor de vacan i a serbrilor)SOCIAL SERVICES(social support at home, counselling in the out-patient clinic, preparing the documentation and obtaining social rights, organising support groups, holiday activities and celebrations)

KINETOTERAPIE(ntreinere i terapie pentru pacienii cu deficiene motorii)PHYSIOTHERAPY(care and therapy for patients with mobility impairment)

CENTRE DE ZI(consiliere i activiti creativ/recreative)DAY CENTRES(counselling and creative/recreational activities)

13 266Servicii

Services

1 247edine

Sessions

2 655Participri

Participations

CONSULTAN ACORDAT N ALTE UNITI SPITALICETI(personalul HOSPICE colaboreaz cu specialitii din spitale n probleme de ngrijiri paliative)COUNSELLING OFFERED IN OTHER HOSPITAL UNITS(the HOSPICE personnel collaborates with specialists from hospitals concerning palliative care services)

CONSILIERE PSIHO-EMOIONAL (edine susinute de psiholog)PSYCHO-EMOTIONAL COUNSELLING (sessions with the psychologist)

CONSILIERE SPIRITUAL (consiliere oferit n funcie de credinele i valorile bolnavilor i aparintorilor acestora)SPIRITUAL COUNSELLING (counselling offered according to the religious beliefs and values of the patients and their families)

1 282Intervenii

Interventions

1 443edine

Sessions

3 701edine

Sessions

Majoritatea celor care iau contact cu HOSPICE spun c gsesc aici o alt lume. Iar noi credem c acest lucru se ntmpl pentru c ntreg personalul medical de la HOSPICE pune la dispoziia pacientului tot ce are mai bun. Dincolo de cunotine i profesionalism, este implicat foarte mult suflet. Iar acest lucru face diferena.

Most of those coming into contact with the HOSPICE feel they have found a different world. And we believe that this is because the entire HOSPICE medical staff do their very best for our patients and their families. Team members are not just outstanding professionals, but are first of all, people who put a lot of heart into everything they do.

CRISTINAGHIRANDirector ServiciiPacieni BraovPatient ServicesDirector Braov

RUXANDRACIOCRLANDirector ServiciiPacieni BucuretiPatient ServicesDirector Bucharest

4 HOSPICE, n inima pacienilorHOSPICE in patients hearts Mrturiile beneficiarilor Testimonies of beneficiaries

ngrijirea paliativ nu nseamn doar ngrijire acordat n stadiile terminale ale unor boli, ci sprijin constant atunci cnd un diagnostic grav afecteaz un pacient, dar i pe toi cei din jurul su. O relaie de ncredere pacient - familie - echip de ngrijire se creeaz n timp. Serviciile HOSPICE existente la acest moment n Bucureti sunt solicitate si foarte apreciate, iar nevoia de paliaie n zon este foarte mare.

Palliative care is more than just terminal care, it is the constant support received by a patient and his loved ones when he is affected by a diagnosis of incurable illness. A trust-based relationship between the patient, family and carers takes time to build. The HOSPICE services currently available in Bucharest are sought after and highly valued and the demand for palliative care in the area is very high.

nainte de HOSPICE nu am avut altceva dect diagnostice nfricotoare i fie medicale din care ncercam s aflm cum va arta viaa noastr. Cristina, fetia noastr de 5 ani, sufer de o boal care o face dependent de noi din punct de vedere fizic, iar ea are tendina s se retrag, s se izoleze. HOSPICE este singurul loc n care se joac, vorbete, zmbete. Este lumea care i aduce bucurie, care i terge temerile i care i arat c povetile pot avea i final fericit.

Before HOSPICE we had nothing else but a frightening diagnosis and medical records from which we were trying to determine what our life will be like. Cristina, our 5 year old daughter, is suffering from an illness that makes her physically dependent on us. She has the tendency to withdraw and isolate herself. HOSPICE is the only place where she likes to play, where she talks and smiles. It is a world that brings her joy, chases away her fears and shows her that stories can have a happy ending.

Liliana Bali, mama Cristinei - pacient HOSPICEPatient Cristinas mother Vin de 8 ani la HOSPICE. Pentru mine, aici e acas. Aici am nvat cum s lupt cu boala i am aflat c eu sunt mai puternic dect ea. Cteodat m ngenunchiaz, am impresia c m va dobor. Dar apoi m ntorc aici i primesc sprijin i speran. HOSPICE m-a ajutat s merg mai departe.I have been in HOSPICE care for 8 years now. For me, this is home. Here Ive learned how to fight against pain and I have discovered that I am stronger than the illness. Sometimes I feel tired, I feel like the illness will break me down. But then, I come back here and I receive support and hope. HOSPICE helped me to carry on.

Gizella Incze - pacient HOSPICE HOSPICE patient

Unul dintre bieii notri nu mai este. La final, boala l mpiedica pn s i tueasc. Dificultile de respiraie, suferina fizic, oboseala, toate te apas. Cei de la HOSPICE ne-au ajutat, au preluat grijile noastre, le-am putut ncredina biatul n cele mai dificile momente. Nimeni nu realizeaz ct de greu este pentru familie s dea piept cu o astfel de boal.One of our sons is not with us anymore. In the final stage of the illness it was impossible for him to even cough. His breathing difficulties and physical pain, combined with our lack of sleep, were a considerable burden on our shoulders. The HOSPICE team helped us, taking away for a while our worries, allowing us to entrust them with our son in the toughest moments. Nobody realises how hard it is for a family to fight with such an illness.

Emil Haghel, tatl a 5 copii pacieni HOSPICEfather of 5 children - HOSPICE patients n urm cu 4 ani, am fost diagnosticat cu cancer de colon. Vestea m-a drmat. Cei de la HOSPICE Casa Speranei m-au ajutat s mi regsesc echilibrul. Terapia cu psihologul i activitile din centrul de zi au contat i conteaz enorm. Mai mult, aici am vzut persoane cu aceeai boal, care sunt bine, iar asta mi-a dat i mie putere.4 years ago I was diagnosed with colon cancer. The news devastated me. HOSPICE Casa Speranei helped me regain my balance and faith. The therapy with the psychologist and the day centre activities are very important to me. Here I have seen people with the same illness as me who are doing well, and that gave me strength.

Aurica Nica- pacient HOSPICE HOSPICE patient

ADVOCACY I DEZVOLTARE NAIONALADVOCACY AND NATIONAL DEVELOPMENT

5 Profesioniti pentru oameniProfessionals for peopleEducaie i dezvoltare naionalEducation and National Development

Propuneri legislative pentru a reglementa i facilita acordarea de servicii paliative n Romnia

Legislative proposals to improve and facilitate the access to palliative care in Romania

Campania Naional pentru Promovarea i Dezvoltarea ngrijirii Paliative

National Awareness and Palliative Care Development Campaign

Lansarea platformei de informare www.infopaliatie.ro, dedicat pacienilor i familiilor acestora

Launching the Online Information Centre www.infopaliatie.ro, for patients and their families

HOSPICE Casa Speranei face permanent eforturi pentru a lrgi accesul bolnavilor incurabili la paliaie, prin advocacy, instruirea profesionitilor din domeniul medico-social i campanii naionale de informare.

HOSPICE Casa Speranei is constantly working to expand patient access to palliative care through advocacy, training of medical and social care professionals and national awareness campaigns. www.infopaliatie.ro

EDUCAIEEDUCATION

de medici au urmat cursuri onlinedoctors attended online courses

de cursuri au fost organizate pentru asisteni medicali din ar i strintate (n limba romn, englez sau rus) courses were organised for Romanian and foreign nurses (courses in Romanian, English or Russian)

de specialiti din ar i strintate (300 de medici, 799 de asisteni medicali, 550 de studeni la medicin i asisten medical i ali 203 profesioniti) au participat la programe educaionaleRomanian and foreign specialists (300 doctors, 799 nurses, 550 medical and nursing students and other 203 professionals) attended educational programmes

Pn n prezent, HOSPICE a instruit n ngrijire paliativ mii de profesioniti din Romnia i din strintate. n 2013:To date, HOSPICE has trained in palliative care thousands of professionals from Romania and abroad. In 2013:

de absolveni cu licen din ntreaga ar au urmat cursurile Masterului n ngrijiri Paliative (ajuns la a 4-a promoie)licensed graduates across the country attended the Masters in Palliative Care courses (the fourth generation masters)

medici din promoia 2012-2014 au participat la cursurile pentru obinerea atestatului n ngrijiri paliative (ajuns la a 7-a promoie)doctors from the 2012-2014 class attended courses to obtain a certificate in palliative care (the seventh generation masters)

de specialiti au participat la cea de-a XIX-a ediie a Conferinei Naionale de ngrijiri Paliativeprofessionals attended the 19th edition of the National Conference for Palliative Care

www.studiipaliative.ro

Lucrnd n domeniul ngrijirii paliative, ai ansa de a oferi sprijin celor pe care sistemul sanitar pare s-i abandoneze, dar ai i provocarea de a lucra ntr-un domeniu n care nevoia este enorm i resursele sunt limitate. nvndu-i pe alii, medici, asisteni medicali i sociali, psihologi, voluntari, manageri, ajungem indirect s influenm vieile a zeci de mii de oameni.

Cnd vorbim de boli cronice progresive, alturi de pacienii n suferin este afectat i familia, care e obligat s-i asume responsabilitatea ngrijirii, pacienii prefernd de cele mai multe ori s rmn acas. Pentru a-i ajuta, organizm sptmnal cursuri i am lansat o platform educaional cu materiale video, brouri i sfaturi, ce explic ntr-o manier simpl.

Echipa de educaie i dezvoltare naional ncearc, prin proiecte, s testeze modele viabile pentru Romnia, pentru dezvoltarea viitoarelor servicii de paliaie. Ne dorim, astfel, ca bolnavii din ntreaga ar, nu numai cei din Braov sau Bucureti, s aib o speran.

Working in palliative care offers the chance to provide support to those who seem abandoned by the healthcare system, as well as the challenge for working in a field of ever growing need and limited resources. Teaching others (doctors, nurses, social workers, psychologists, volunteers and managers) helps to reach out and influence the quality of life for tens of thousands of people.

When affected by progressive chronic illnesses, it is not only patients who are suffering but their families as well, as patients often prefer to stay at home. To help them, we organise weekly courses and we launched an educational online platform with videos, brochures and practical advice that enables family members to perform simple medical manoeuvres.

The education and national development team is testing various models potentially replicable in Romania for developing new palliative care services. We would like this model to bring hope for patients not only in Braov and Bucharest but all over the country.

CONF. DR.DANIELAMOOIUDirector Educaiei DezvoltareNaionalEducation andNationalDevelopmentDirector

6 Un vis devenit realitate A dream come trueCentrul HOSPICE n BucuretiHOSPICE Centre in Bucharest

n Bucureti, doar 7% dintre bolnavii incurabili beneficiaz de ngrijiri paliative. Estimrile arat c peste 15.000 de pacieni au nevoie anual de ngrijire paliativ n aceast zon. Noul centru HOSPICE va oferi gratuit pacienilor copii i aduli cu boli incurabile, servicii de ngrijire la domiciliu i consultaii n ambulatoriu, internri n unitatea cu paturi i servicii psiho-emoionale.

In Bucharest, only 7% of people with an incurable illness have access to free of charge palliative care. Statistics show that over 15,000 patients need palliative care each year in this area. The new HOSPICE centre will offer free of charge care to both children and adults with an incurable illness through home care services, consultations in the outpatient clinic, inpatient unit admissions, emotional and social care.

n decembrie 2013, s-a fcut recepia cldirii noului centru HOSPICE din Bucureti. Costurile pentru construcie au nsumat pn la momentul recepiei 3.459.000 de euro. n continuare, centrul va fi echipat cu aparatur medical i mobilier. Campania de atragere de fonduri pentru noul centru din Bucureti continu i i propune s strng fondurile necesare pentru primele 9 luni de operare. Centrul i va deschide uile pentru primii pacieni n toamna anului 2014.

In December 2013, the construction of the new centre in Bucharest was almost finished. The cost of construction until that moment totalled 3,459,000 euros. As a next step, the building will be fitted out with utilities, furniture and medical equipment. In 2014, the fundraising campaign will continue in order to cover the costs for the first 9 months of operation. The centre will be opened for the first patients in the autumn of 2014.

23Paturi -

capacitatede internare

Beds in theinpatient unit

700Internri nunitatea cu

paturi pe anAdmissions to

the inpatientunit per year

3NiveleFloors

3 421Metri ptrai

suprafa utilSquare meters

total floor space

5 700 000Investiie total

estimatEstimated

total investment

2 000Pacieni

ngrijii pe anPatients cared

for per year

8 000Consultaii

n ambulatoriupe an

Consultations inthe outpatientclinic per year

11 000Vizite la

domiciliu pe anHome care

visits per year

5 000 Participri ncentrul de zi

pe anVisits in theday centre

per year

Domeniul de la Adunaii Copceni a fost donat de familia Florescu pentru ca aici HOSPICE s creeze un centru care va oferi ngrijire copiilor cu boli incurabile. Acesta va include o unitate cu paturi, un centru de zi pentru terapie prin joc, ateliere pentru activiti recreative i se vor organiza tabere de var. Lucrrile de renovare au nceput, iar prima tabr de var a fost organizat n august 2013.

The land and buildings at Adunatii Copceni were donated by the Florescu family to HOSPICE Casa Speranei for the purpose of creating a HOSPICE centre for children with life-limiting illnesses. This will include an inpatient unit for respite care and a day centre for play-therapy. Also, it will be the host for workshops and summer camps. The renovation work has started and the first summer camp was organised in August 2013.

7 ObiectiveObjectivesMesajul directorului executivExecutive Director's Message

HOSPICE Casa Speranei a ncheiat un an 2013 foarte intens i plin de provocri. Principalele realizri sunt faptul c am reuit s meninem serviciile (n condiiile unui climat economic cel puin incert) i, mai mult dect att, am reuit s continum dezvoltarea organizaiei, terminnd construirea unei noi uniti cu paturi n Bucureti. Pentru 2014, unul dintre obiective este transformarea acestei cldiri ntr-o unitate de tip hospice funcional. Avem n vedere o strategie pe termen lung i am nceput s investim, alturi de partenerii notri, n soluii inteligente, mobile, n sustenabilitate i n programe cu impact naional.

For HOSPICE Casa Speranei, 2013 was an intensive year, full of challenges. The most important achievements of this year were the fact that we managed to maintain our services in the uncertain economic context and more than that we managed to continue developing our organisation, finishing the construction work on the new inpatient centre in Bucharest. For 2014 one of our objectives is to transform this building into a working hospice unit. We have a long term strategy and have started to invest, together with our partners, in intelligent and mobile solutions, mobile, and in sustainability as well as in programmes with national impact.

ALEXPDUREANUDirector ExecutivExecutive Director

8 Cauza HOSPICE, susinut de comunitateThe HOSPICE cause, supported by the community Strngerea de fonduriFundraising

Cele mai importante evenimente i campanii HOSPICEThe most important HOSPICE events and campaigns

CAMPANIA 2%THE 2% CAMPAIGNCampania 2% a strns n 2013 peste 220.000 de euro. Redirecionarea a 2% din impozitul pe venit este modalitatea prin care orice persoan care realizeaz venituri din salarii i din alte surse poate susine HOSPICE fr niciun cost.

The 2% campaign raised over 220,000 euros, in 2013. Redirecting 2% of the income tax is a way in which everyone making an income from salaries and other sources can support the HOSPICE at no personal cost.

ECHIPA HOSPICE LA MARATONUL INTERNAIONAL BUCURETITEAM HOSPICE AT THE BUCHAREST INTERNATIONAL MARATHON

Echipa HOSPICE a devenit n 2013 cea mai mare echip de la Maratonul Internaional Bucureti, cu 450 de alergtori. Participanii, alturi de companiile susintoare, au fcut posibil ca HOSPICE s strng, n cadrul evenimentului, 70.000 de euro.

With 450 runners, Team HOSPICE became the largest team at the Bucharest International Marathon in 2013. The runners, together with the supporter companies, raised 70,000 euros for HOSPICE within this event.

Legea Sponsorizrii i prevederile Codului Fiscal permit societilor comerciale s direcioneze pn la 20% din impozitul pe profit ctre o organizaie neguvernamental, precum HOSPICE. Fundaia a obinut 225.000 de euro n urma acestei campanii derulate n decembrie 2013.

The Sponsorship Law and the Fiscal Code allow companies to sponsor charities like HOSPICE, and benefit from tax incentives up to certain limits. The foundation managed toraise 225,000 euros from this campaign in December 2013.

CAMPANIA ADRESAT SOCIETILOR COMERCIALECAMPAIGN FOR THE COMPANIES

BALUL FLORII DE COLEDELWEISS BALLBalul Florii de Col este unul dintre cele mai apreciate evenimente caritabile din Romnia. La ediia din 2013 au participat peste 300 de invitai i s-au strns 110.000 de euro.

The Edelweiss Ball is one of the most appreciated charity events in Romania. Over 300 guests attended the Ball in 2013 and the event raised 110,000 euros for the HOSPICE.

CAMPANIA LUNA FLORII DE COLEDELWEISS MONTH CAMPAIGNCampania Luna Florii de Col s-a derulat n 2013, pentru al 19-lea an consecutiv, n 120 de lcae de cult, cu sprijinul preoilor i pastorilor din judeul Braov. Apelul acestora ctre enoriai a fcut ca HOSPICE s primeasc peste 14.000 de euro din donaii.

The 19th edition of the Edelweiss Month Campaign has been organized in 2013, in 120 churches, with the support of the priests and pastors from Braov. Their call to the community raised over 14,000 euros, from donations, for the HOSPICE.

LUNAFLORIIDE COLEDIIA a 19-a

Actualul context economico-social nu este cel mai prielnic pentru atragerea de fonduri, chiar dac susinem o cauz important la nivel naional. Tocmai de aceea, provocarea anului 2013 a fost i mai mare. Fundraising-ul este un domeniu n care trebuie s fim mereu activi, creativi si hotri. Finalizarea unitii HOSPICE din Bucureti a fost motivaia perfect s lucrm mai mult i mai bine i s obinem rezultate bune. n 2013 am avut recorduri nu numai n ceea ce privete sumele strnse, ci i n cadrul unor evenimente: cea mai mare echip de la Maratonul Internaional Bucureti (450 de alergtori), un record Guinness Book i prima alergare pe vertical, n cea mai mare cldire de birouri din ar. Ne propunem s ridicm tacheta n fiecare an, aa c inei aproape!

The current socio-economic context is not the most favourable for fundraising, even if we support an important cause at a national level. Therefore, 2013 has been a very challenging year. Fundraising is an area where we must always be active, creative and determined. Finishing the construction of the HOSPICE unit in Bucharest was the perfect motivation to work harder and achieve better results. In 2013 we have set records not only concerning the amount of funds we have raised but also in our fundraising events: the largest team within the Bucharest International Marathon (450 runners), a Guinness Book record within the same event and the first vertical run in the largest office building in the country. We aim to raise the bar every year, so stay tuned!

PATRICIAPUCHILCoordonator EchipFundraising BucuretiFundraising TeamLeader Bucharest

ntr-o societate care se lupt cu grave probleme sociale, HOSPICE este rspunsul la strigtul de ajutor al pacienilor cu boli incurabile. Comunitatea a neles nevoia, a recunoscut calitatea serviciilor i sprijin activitatea de strngere de fonduri. Oameni din toate categoriile sociale au ales, ntr-un numr impresionant, s redirecioneze 2% din impozitul pe venit sau s doneze. Pentru c suntem contieni de puterea celor muli, am creat un mecanism la ndemna tuturor, astfel nct pe site-ul fundaiei, oricine poate contribui lunar cu o mic sum de bani. i mediul de afaceri se implic social, multe companii alegnd s susin constant cauza HOSPICE. Doar cu Oameni alturi, putem ajuta ali Oameni! Mulumim!

In a society struggling with serious social problems, HOSPICE is the answer for the desperate cry for help of patients with incurable illnesses. The community understood the need, recognised the quality of services and supports our fundraising activities. An impressive number of people from all walks of life have chosen to redirect 2% of their income tax or to donate. Being aware of strength in numbers, we have created a mechanism available to everyone, on the foundation's website, where anyone can contribute with a small amount, on a monthly basis. Also, the business sector is socially active, many companies choosing to support HOSPICE constantly. Only together with people we can help other people! Thank you!

GABRIELATKESCoordonator EchipFundraising BraovFundraising TeamLeader Braov

9 Iubirea n micareLove in actionVoluntarii HOSPICEHOSPICE Volunteers

n 2013, HOSPICE Casa Speranei s-a bucurat de sprijinul a peste 400 de voluntari, de toate vrstele, din ar i din strintate.

Voluntarii HOSPICE au druit peste 10.000 de ore din timpul lor i au vzut cum gestul lor se transform n clipe de bine pentru copiii i adulii diagnosticai cu boli incurabile.

Voluntarii fundaiei au obinut recunoaterea implicrii lor prin premiul pentru cel mai bun proiect de voluntariat din 2013 - Corul Inocenilor, din domeniul sntii (Gala Naional a Voluntarilor).

In 2013, HOSPICE Casa Speranei enjoyed the support of over 400 volunteers of all ages, from Romania and other countries.

The HOSPICE volunteers gave over 10,000 hours of their time and saw how their gesture was turned into memorable moments for the children and adults diagnosed with incurable illnesses.

The HOSPICE volunteers received recognition for their involvement by winning the award for the best volunteering project in 2013 - The Choir of The Innocents, in the health category (The National Gala of Volunteers).

Voluntarii fundaiei sunt alturi de pacienii HOSPICE, ajutndu-i s se bucure de fiecare clip de via. Fie c sunt lng paturile bolnavilor spitalizai sau iau parte la activitile din centrele de zi, fie c sunt implicai n campaniile i evenimentele de strngere de fonduri sau sunt alturi de angajai n toate departamentele organizaiei, voluntarii dovedesc n fiecare zi c sunt, n fapt, coloan vertebral pentru HOSPICE.

The HOSPICE volunteers are helping patients to enjoy every moment of their lives. Whether at the bedside of the hospitalised patients, taking part in the day centre activities, involved in fundraising events and campaigns, or helping HOSPICE staff in various departments, the volunteers prove every day that they are the very backbone of HOSPICE.

10 De unde vin fondurile HOSPICEWhere the funds are coming fromVENITURIINCOME

HOSPICE a continuat campania de strngere fonduri pentru centrul HOSPICE din Bucureti pe o linie financiar separat. Aceast campanie a reuit s atrag 1.523.583 n 2013. Cheltuielile nregistrate sunt de 2.309.062 . Diferena dintre cheltuieli i venituri a fost acoperit din ncasrile pentru noul HOSPICE din anii 2011 i 2012.

Finanri publiceStatutory Funding

GranturiTrusts

CompaniiBusinesses

Anglia i SUAUK and USA

Donaii individualeDonations from individuals

EvenimenteEvents

AlteleOther

CursuriCourses

20%

19%

19%

13%

13%

13%

2%

1%

2 251 843TOTAL

Cum au fost cheltuite fondurileHow the money was spent

HOSPICE continued to raise funds for the HOSPICE centre in Bucharest on a separate financial line. This campaign raised 1,523,583 in 2013. Expenditure totalled 2,309,062. The difference between expenditure and income was covered from the funds raised for the HOSPICE centre in Bucharest in 2011 and 2012 .

CHELTUIELIEXPENDITURES

66%

13%

13%

8%

Servicii pacieniPatient Services

Strngere fonduriFundraising

EducaieEducational Programmes

AdministraieAdministration

2 098 427TOTAL

Towards a Palliative Care Strategy. Bridging civil society with public authoritiesTrust for Civil Society for CEE

T.I.M.P (Tineri, Informare, Motivaie, Participare) Fundaia pentru Dezvoltarea Societii Civile

Nursing excellence for underserved population in RomaniaBristol Myers Squibb Foundation

ngrijim mpreunFundaia Vodafone Romnia

Specialised palliative care education for medical professionals in RomaniaOpen Society Institute New York

Overcoming disparities in access to quality basic palliative care in the community: Partnerships to identify and improve clinical, educational, legal, and economical barriers. Swiss-Romanian Cooperation Programme

Development of lymphoedema care services at HOSPICE Casa Speranei Braov and BucharestAVON Romnia

mpreun pentru copiii cu boli amenintoare de via din Bucureti - nfiinarea i dotarea unui centru de stimulare multisenzorialRompetrol

Key specialist nurses for children and young adults with cancer (Dragos Nurses)Bristol Myers Squibb Foundation

ATOME (Access to Opioid Medication in Europe)European Commission

Development of Palliative Care Services in the Republic of Serbia - European Union

Consolidarea serviciului de ngrijiri paliative pediatriceUnited Way Romnia

Integration of medical oncology and palliative care procedures in various institutional and economical settingSwiss National Science Foundation

EUPCA (European Palliative Care Academy) Bosch Foundation

O via de calitate pentru persoanele cu boli incurabile: informare, instruire, consultan Swiss-Romanian Cooperation Programme

Costing Palliative Care Approach in Primary Care Foundation Open Society Institute

11 Proiecte i programeProjects and Programmes n 2013, HOSPICE Casa Speranei a derulat proiecte i programe medicale i de educaie cu sprijinul unor finanatori i parteneri.

In 2013, HOSPICE Casa Speranei has developed medical and educational projects and programs with the support of sponsors and partners.

3P GardianA&A Pro DiagnosticA.E. NeacuAchieve GlobalAct PRActiv Metal GazAcvatotAgenia SrbuAgilis ComAgrar ClimaAgricostAIC ConstructionAir BP Sales RomniaAlexandra LobkowiczAlexandrionAllen & OveryAlliance ComputersAlma Linda PhotographyAmann RomniaAmgenAna KaloniAnatoly grup vocalAnchor GrupAndra IliaAndreea RducanAndrei NiculescuAndrei RouAngelli Spumante & AperitiveAntemieAntoniaApa NovaArcticAromapa ServAromaticsAsociaia Agora Club nr. 3ATE BankAuto KinoAutocomexim

AutonomAvincisAvon RomniaB&B CollectionBcnia VecheBagnasco & Bagnasco ConsultingBali SpaBanca Comercial RomnBASFBaumaxBayerBDG ImportBeautikBen MurphyBerria GambrinusBest Communication MediaBGSBiadrin ImpexBiblioteca NaionalBiserica Penticostal FiladelfiaBit SoftwareBorero ComservBrintex British EmbassyBursa de Valori BucuretiC.E.F.SCalexagroCalmedoCamera de Comer i Industrie BraovCardioswissCarmen-Ana InternationalCarolina IacobCarrefourCasa PanciuCasadiCastilloCefinCGS

Chemco TradeChez MarieChic VilleCib TransClaucontClaudia GeorgescuClinica Sante VieCMC Consulting&IntermediationCMG RomniaCMS Cameron McKennaCoca-Cola HBC RomniaCodru NicolauCoface Bois ColombesCoface Romnia Insurance ServiceCombera RetailCompagnie Francaise D'assurance Pour Le CommerceConstantin VduvaConstruct WallContinental Powertrain RomniaCopy TopCorusCosmoteCripoCrowne Plaza HotelCvintetul AllegrettoDaceliDaikin Airconditioning CentralDallmayr Vending & OfficeDan DimancescuDan Viciu OlteanuDana RogozDana SvuicDana TnaseDanina StarDanone Producie i Distribuie de ProduseDaveximDelacoDell

DeloitteDelta ACM 93Dennemeyer & AssociatesDHM Printing&AdvertisingDrago BucurenciDTZDumitru Dorin PrunariuDuncan RidgleyEast Horn Clinical ServicesEastwell ManorEbasto ComEchipa de Rugby a RomnieiECSDL RomniaEdenredElectrica Furnizare S.A. - Sucursala Transilvania SudElena DamianEmanuela Popa-RaduEmtechEnelEnergy Financing Team RomniaEricssonEter SpaEuler Hermes Services RomniaEura RelocationEuro Inter Trade CorporationEuroferEuropean Relocation AssociationEuropharm Holding S.A.EurowebEVB InvestmentsExcel CompExterieur S.A Bois ColombesEY RomniaFabrik MediaFackelmann CoFan CurierFarmacia AnnylonFarmamedFC Steaua BucuretiFederaia Patronatelor Farmaceutice din RomniaFevamedFF Group RomniaFildas TradingFloreasca Business ParkFloreasca EvolutionFlorin MunteanuForja Neptun

FortusFox WinesFundaia LEGOFundaia AcvatotFundaia HelpnetFundaia Rdcini GrupFundaia Regina MariaFundaia Strop de CerFundaia Vodafone RomniaFunparkG2 TravelGabriel SolomonGeberitGeneral NumericGenerali RomniaGeorge DobreGistel TiresGlaxoSmithKlineGlaxoSmithKline Consumer HealthcareGlobal Vision Property ManagementGrand Hotel ContinentalGraphic Open Systems LtdGreen Stal TradingGrip ConvertGrozboGruppo ValinstH&E ReinertHard Rock Cafe BucharestHarman IndustriesHeidi ChocolateHeineken RomniaHervis Sports and FashionHilton Athenee PalaceHipcommHipoxiHome DecostyleHotel Afrodita Venus-Ipsar Hotel BielmannHoward Johnson HotelHranipexHrb Hotel Restaurant BarIacob Green AleIBMICCO - Industrial Park BraovIlie NstaseInfinity Business SolutionsING Bank

InimedInspectoratul colar Judeean BraovInter CamionInterContinental BucharestInternational Healthcare SystemsInternational Wine Contest BucharestIntesa Sanpaolo Romnia BankInvestment SolutionsIoan BolboreaIoan SchiauIoan i Mariana NemoiIon TudorIrina NiculaeIrina SrbuITCIzvorul MinunilorJames Heyworth-DunneJTTI RomniaJulia DonaldsonKasperskyKaufland RomniaKeller&KalmbachKika MobilierKnole CastleKPMGKronwell HotelKrumsebKuibKunnai ThaiLa Cantine de NicolaiLa FntnaLa Vatra ArdealuluiLanderLibrria Adevr DivinLord Sackville WestL'Oral RomniaLowe and PartnersLucian PopaLuminia GligaLuxetravel DealM M ProductMara LogisticsMaria AndreiMarialaura & Roberto MusneciMarriott HotelMars RomniaMarsh Romnia

Marub Max BetMcCann EricksonMed Serv UnitedMedical RehmaMerckMetchim Microtek SystemsMiele TehnicaMihai BaractaruMihai MarinescuMihai RdoiMihai StoicaMinisterul CulturiiMircea LucescuMircea RednicMircea SanduMiruna VidicanMol RomniaMonicarnMorgano HipicMotor Heads PublishingMultigama TradeMultimedia ConsultingNadamasNature GalleryNeomed ResearchNew Montana HotelNicolae MoldovanNicolae SavopolNicolae VoiculeNicu CosniceruNordic Petfood ProductionNoriel ToysNormark Sport RomniaNuclear Ndt ResearchOlin FoodsOMV PetromOptica Tehnico MedicaleOracle RomniaOrdo Equestris Vini Europae Consulat RomniaOTP BankOztasarPamac ProdimpexPapiotaParmalat Romnia

Parmel GommaPast ConsultancyPayU RomniaPepsicoPersonaliaPeseta ComPetit BateauPetrofacPFA Alexe Anca DanielaPiatra oimuluiPolicromPorsche Finance Group RomniaPorsche Inter AutoPorsche RomniaPorsche VersicherungsPreda PublishingPreh RomniaPriceWaterhouseCooperPrim Consulting GroupPrinesa Marina SturdzaProcter & GambleProestetica SanaPropackProtecia Solului i a RezervoarelorProtopopiatul Ortodox BraovPuroliteQuickweb InfoRaiffeisen BankRaiffeisen LeasingRap DevelopmentRap InstalRBS BankReber AmadeusReckitt BenckiserReconRed Angus SteakhouseRedplastRefaromRegency CompanyRegina MariaRelais Guiers Ainan - Entraide InternationaleRemus MironRenania TradeRenaud InvestmentsRO TaxiRodica HorobeRolem

Romeo DaradicsRompetrolRomtelecomRoxana EneRPHISaatchi & SaatchiSabion ElenS.C. Gospodrie Local BicoiSchaeffler RomniaSchneider ElectricSchunk Carbon TechnologySeema i Chris PatersonSelgros Cash&CarryServ CompanyServier PharmaSGS Trans CoShape PilatesShopmania NetSiemensSika RomniaSimina FilatSir Michael CarringtonSivecoSky BarSky KartingSmartatleticSnagov ClubSofmedicaStamelStar East Pet tefan OprinaSteinel ManagementStephan PelgerStick ServStyle & NatureSuporter Call CenterSysmerom Comerban Musneci & AssociatesTac-packTecton TrustTehnorailTekno Cut SteelTeodora MarinThe HarpThe HUB PartnersTim WilkinsonToader erban-Cristian Auditor Financiar

TopimobTotal ControlTotal Lubricants RomniaTPA HorwathTractor Proiect ComertTransenergo ComTrupa BandidosTrupa CompactTrupa de percutie VersusTrupa VunkTscherteu AlexanderTudor Personal TailorTupai RomTymbarkUnicredit Consumer FinancingUnicredit Leasing CorporationUnicredit iriac BankValachia ApexValvis Holding DistributionVanserviceVeolia Water Solutions&TechnologiesVictor VladVincom DistributionViola TotalViscontiViscri 125Visual FanVladimir TransVodafone RomniaVolksbankVolvoWagner ArteWeb Trade BusinessWhiteland Import ExportWhiteland LogisticsWilliam LobkowiczWi-novationWipro TechnologiesWorld BankWorld ClassZenith MediaZentivaZolya ElemerWargha Enayati

Antena 1AvocatNet.roChelgate RomniaCity CompassCocor Media ChannelDigi24 Etiquette MagazineHotnewsInitiative MediaInovativ MediaINGA MediaKiss FMMagazinul ProgresivMagic FMMix TVNova TVPrima TVPro TVRadio Antena BraouluiRadio BraovRadio Romnia ActualitiRadio Trgu-MureRomania InsiderRomnia Liber RTTSelect NewsTEXTV CityTVRTVS BraovVision Media Plus

Alturi de HOSPICEHOSPICE supporters

Mulumit susintorilor HOSPICE, mii de pacieni din Romnia au beneficiat de sprijin n lupta cu o boal incurabil.Thanks to HOSPICE supporters, thousands of patients in Romania have received support in the fight with an incurable illness.












Parteneri mediaMedia partners












HOSPICE Casa Speranei este o organizaiede caritate nregistrat n Registrul Asociaiilor i Fundaiilor al Judectoriei Braov cu nr. 37/1992.HOSPICE Casa Speranei is a charityregistered in the Register of Associations and Foundations of Brasov Court under No. 37/1992.

Preedinte / President: Graham Perolls CMG OBEDirector Executiv / CEO: Alex Pdureanu

Patroni Spirituali / Patrons: Andrew Bache CMG,Dr. Mary Baines OBE, erban Cantacuzino CBE,Ducesa de Norfolk, Princess Marina Sturdza

HOSPICE Trustees: Graham Perolls - Chairman, James Niblett,Ioan Oarcea, Columbia Radu, Erik van Geffen, Dan Deteanu,Adrian Stanciu, Marian Nica, Snziana Drago, Anthony Mauger,Tim Wilkinson, John Florescu, David Trow, Cristina Preda.

CONTURI BRAOV: LEI RO30 RZBR 0000 0600 1220 1968 Raiffeisen BraovUSD: RO25 BPOS 0800 2606 441 USD01 Banc Post BraovEUR: RO78 BPOS 0800 2606 441 EUR01 Banc Post BraovGBP: RO04 BPOS 0800 2606 441 GBP01 Banc Post Braov

CONT BUCURETI:LEI: RO49 BPOS 8520 2606 441 RON01 Banc Post BucuretiSWIFT: BPOS ROBUCUI: 4921504 Fundaia HOSPICE Casa Speranei

Fgra - punct de lucruFagaras - Satellite teamSpitalul Municipal Dr. Aurel TulbureStr. Ghioceilor nr. 1, Fgra - 505200T. +40 268 281177

Zrneti - punct de lucruZarnesti - Satellite teamSpitalul Dr. Tiberiu SparchezStr. Policlinicii nr. 12, Zrneti - 505800T. +40 771 440783

HOSPICE Casa Speranei BucuretiStr. Tmioarei nr. 121 - 123, 023642Sector 2, BucuretiT. +40 21 326 [email protected]

Hospices of Hope UK11 High Street, Otford, Kent TN14 5PGT. +44 (0)1959 [email protected]

Hospices of Hope USA29 Dickinson Avenue Nyack10960, New York, USAT. +1 (0)845 512 [email protected]

HOSPICE Casa Speranei BraovStr. Sitei nr. 17A, Braov, 500074T. +40 268 474 405 +40 372 730 114F. +40 268 474 [email protected]

Centrul de Studii Prinesa DianaPrincess Diana Study CentreStr. Piatra Mare nr. 101, Braov, 500133T. +40 268 472 455 +40 268 513 598F. +40 268 474 [email protected]

hospice.rofacebook.com/HospiceCasaSperantei

n noiembrie 2011 sistemul de management al calitii a fost

auditat i certificat ISO 9001:2008 pentru al treilea ciclu

consecutiv de 3 ani, pentru serviciile de ngrijiri paliative i

programele de educaie a personalului de specialitate.In November 2011 the quality

management system of HOSPICE Casa Speranei was assessed and certified for the third 3-year cycle,

to meet the requirements of ISO 9001:2008 in palliative care

services and education.

HCS Raport Anual 2013 Web

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